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DEMENTIA & CAREGIVING RESOURCES

A Guide to Help You Navigate the Journey

Caring for someone with dementia can feel overwhelming—especially when you're trying to navigate through endless information, conflicting advice, and emotional stress. This page was created to simplify that process and provide essential dementia resources for caregivers. 💡 Think of this as your starting point for caregiving support—not your entire roadmap.

Instead of sending you down a rabbit hole of hundreds of links (included in my books), I’ve carefully selected the most helpful, trusted, and practical resources to support you—whether you're just starting out or deep into the caregiving journey.

Start Here: The Most Important Resources

Alzheimer's Association

Alzheimer's Navigator - Personalized Action Plan

Alzheimer's Association 24/7 Helpline

 

Alzheimer’s Association provides trusted information, practical caregiving guidance, educational programs, support groups, and local resources for families affected by Alzheimer’s disease and other forms of dementia. Caregivers can find help with daily care, behavior changes, safety planning, caregiver stress, and long-term decision-making at alz.org/help-support/caregiving

Alzheimer's Association 24/7 Helpline

Alzheimer's Navigator - Personalized Action Plan

Alzheimer's Association 24/7 Helpline

📞 800-272-3900: This free, confidential service connects caregivers and families with knowledgeable professionals who can provide dementia-related information, emotional support, crisis assistance, care-planning guidance, and referrals to local resources. Help is available day or night in more than 200 languages.  

Alzheimer's Navigator - Personalized Action Plan

Alzheimer's Navigator - Personalized Action Plan

Alzheimer's Navigator - Personalized Action Plan

 A free, interactive tool from the Alzheimer’s Association that helps caregivers, people living with dementia, and those concerned about memory loss identify their needs and create a customized plan. After answering a few questions, users receive relevant information, practical next steps, educational programs, and local resources covering topics such as daily care, safety, communication, legal and financial planning, and caregiver well-being. Visit alz.org/help-support/resources/alznavigator. 

Eldercare Locator (U.S.)

National Institute on Aging

Alzheimer's Navigator - Personalized Action Plan

 A free public service of the U.S. Administration for Community Living that connects older adults and caregivers with local programs and services. Users can search for help with in-home care, transportation, meals, housing, benefits, caregiver support, legal assistance, and other aging-related needs in communities across the United States. Visit eldercare.acl.gov.  Just enter your ZIP code to get started.

Family Caregiver Alliance

National Institute on Aging

National Institute on Aging

Provides trusted information, practical guidance, educational programs, and support for people caring for adults with dementia, Parkinson’s disease, stroke, and other physical or cognitive conditions. Its website includes caregiver fact sheets, self-care resources, webinars, state-by-state service directories, and personalized support through its CareNav tool. Visit caregiver.org. 

National Institute on Aging

National Institute on Aging

National Institute on Aging

Part of the National Institutes of Health, the NIA provides reliable, research-based information about Alzheimer’s disease and other dementias, caregiving, brain health, aging in place, long-term care, and healthy aging. Its articles and practical guides can help caregivers better understand changing needs and make informed care decisions. Visit nia.nih.gov/health. 

Medical & Diagnosis Support

Alzheimer's Foundation of America

National Institute of Neurological Disorders & Stroke (NINDS)

National Institute of Neurological Disorders & Stroke (NINDS)

The AFA provides education, practical caregiving guidance, support groups, webinars, dementia-friendly activities, and other free resources for families affected by Alzheimer’s disease and related dementias. Caregivers can find help with daily care, safety, behavior changes, planning, and caregiver well-being at alzfdn.org/caregiving-resources. 

National Institute of Neurological Disorders & Stroke (NINDS)

National Institute of Neurological Disorders & Stroke (NINDS)

National Institute of Neurological Disorders & Stroke (NINDS)

Also part of the National Institutes of Health, NINDS provides reliable, research-based information about dementia and other neurological conditions affecting memory, thinking, movement, and behavior. Caregivers can learn about symptoms, diagnosis, treatment, ongoing research, and specific forms of dementia—including Lewy body, frontotemporal, and vascular dementia—at ninds.nih.gov/health-information/disorders/dementia. 

Mayo Clinic - Dementia Overview

National Institute of Neurological Disorders & Stroke (NINDS)

Mayo Clinic - Dementia Overview

The Mayo Clinic provides clear, medically reviewed information about the symptoms, causes, risk factors, and different types of dementia. It can help caregivers better understand cognitive, behavioral, and personality changes, recognize when medical evaluation may be needed, and learn why some dementia-like symptoms may have treatable causes. Visit mayoclinic.org/diseases-conditions/dementia/symptoms-causes/syc-20352013.  

Caregiver Support & Community

Alzheimer's Association Support Groups

Alzheimer's Association Support Groups

Alzheimer's Association Support Groups

These groups offer a safe, confidential setting where caregivers, family members, and people living with dementia can connect with others who understand their experiences. Groups are led by trained facilitators and are available both in person and virtually, with some tailored to specific caregiving situations or stages of dementia. Find a group at alz.org/help-support/community/support-groups. 

AgingCare.com Forum

Alzheimer's Association Support Groups

Alzheimer's Association Support Groups

This site offers a free online community where family caregivers can ask questions, exchange practical advice, share their experiences, and receive encouragement from others who understand the challenges of caring for an aging loved one. Discussions cover dementia behaviors, burnout, family relationships, care decisions, assisted living, end-of-life concerns, and many other caregiving topics. Visit the AgingCare.com/Caregiver-Forum. 

Caregiver Action Network (CAN)

Alzheimer's Association Support Groups

Caregiver Action Network (CAN)

CAN provides free education, practical tools, peer support, and guidance for family caregivers caring for loved ones with Alzheimer’s disease, chronic illnesses, disabilities, and other health conditions. Its resources include caregiver checklists, condition-specific information, self-care guidance, webinars, and tools for navigating medical, legal, and financial concerns. Visit caregiveraction.org.

Practical Caregiving Tools

Medisafe Medication Reminder App

Dangerous Drug Interactions in Seniors

Dangerous Drug Interactions in Seniors

This app helps individuals and caregivers organize medication schedules, receive dose and refill reminders, track whether medications were taken, and review medication progress. Its Medfriend feature can alert a designated family member or caregiver when a dose is missed—especially useful when supporting someone with memory difficulties or a complicated medication routine. The app is available for iOS and Android at medisafe.com/download-the-app. 

Dangerous Drug Interactions in Seniors

Dangerous Drug Interactions in Seniors

Dangerous Drug Interactions in Seniors

This free guide explains why older adults—particularly those taking several prescriptions—face a greater risk of harmful medication interactions. Created by The Lanier Law Firm, the guide outlines common drug combinations to watch for, possible warning signs, and practical steps caregivers can take to reduce preventable medication-related complications. Visit lanierlawfirm.com/guide-dangerous-drug-interactions-in-seniors. 

Lotsa Helping Hands

Dangerous Drug Interactions in Seniors

Lotsa Helping Hands

A free, private online coordination tool that helps caregivers organize support from family members, friends, neighbors, and others who want to assist. Its shared calendar allows volunteers to sign up for needs such as meal delivery, transportation to appointments, visits, and caregiving coverage, while the community space helps everyone stay informed and connected. Visit caregiver.lotsahelpinghands.com/eldercare. 

CaringBridge

Teepa Snow's Positive Approach to Care®

Lotsa Helping Hands

A free, private online tool that helps caregivers keep family and friends informed during a loved one’s health journey without repeating the same updates through numerous calls, texts, and emails. Caregivers can share journal entries, receive messages of encouragement, and organize practical assistance such as meals, transportation, and help with daily tasks. Create a CaringBridge page at support.caringbridge.org. 

Home Safety Checklist (CDC)

Teepa Snow's Positive Approach to Care®

Teepa Snow's Positive Approach to Care®

The CDC’s “Check for Safety” Home Fall Prevention Checklist helps caregivers identify and correct common hazards that can cause an older adult to fall. The room-by-room guide covers stairs, floors, kitchens, bedrooms, and bathrooms, with practical recommendations such as improving lighting, securing rugs, adding handrails, and installing grab bars. View or download the CDC Home Fall Prevention Checklist. 

Teepa Snow's Positive Approach to Care®

Teepa Snow's Positive Approach to Care®

Teepa Snow's Positive Approach to Care®

Teepa offers practical, person-centered education for families and professionals supporting someone with dementia or other brain changes. Its resources teach caregivers how dementia affects behavior and communication, while providing hands-on techniques to reduce resistance, manage daily challenges, preserve dignity, and build more positive connections. Explore the Positive Approach to Care resources. 

Legal & Financial Resources

National Academy of Elder Law Attorneys (NAELA)

National Academy of Elder Law Attorneys (NAELA)

National Academy of Elder Law Attorneys (NAELA)

NAELA is a professional organization for attorneys who assist older adults, people with disabilities, and their families. Its searchable directory can help caregivers locate an elder law attorney for guidance with estate and long-term-care planning, Medicaid and veterans benefits, guardianship, health-care decisions, residents’ rights, and other age- or disability-related legal concerns. Find an attorney at naela.org/find-a-lawyer. 

BenefitsCheckUp: National Council on Aging

National Academy of Elder Law Attorneys (NAELA)

National Academy of Elder Law Attorneys (NAELA)

BenefitsCheckUp®, a free and confidential tool from the National Council on Aging, helps older adults and caregivers identify federal, state, and local programs that may assist with food, medications, health care, housing, utilities, transportation, and other everyday expenses. After answering a few questions, users receive a personalized list of potential benefits and information about how to apply. Visit BenefitsCheckUp.org. 

Medicare.Gov

National Academy of Elder Law Attorneys (NAELA)

Medicare.Gov

The official federal website for Medicare information and tools. Caregivers can use it to understand coverage and costs, compare Medicare health and prescription-drug plans, locate and compare hospitals, nursing homes, home health agencies, and other providers, and find information about skilled nursing and long-term-care coverage. Visit Medicare.gov. 

Medicaid.Gov

VA Caregiver Support Team Directory

Medicare.Gov

The official federal website provides information about Medicaid, a joint federal and state program that provides health coverage to eligible individuals, including many older adults and people with disabilities. Caregivers can learn about eligibility, covered benefits, nursing-facility care, home- and community-based services, and long-term services and support, as well as find contact information for their state Medicaid agency. Visit Medicaid.gov. 

VA Caregiver Support Program

VA Caregiver Support Team Directory

VA Caregiver Support Team Directory

This program provides education, skills training, coaching, peer support, self-care resources, and connections to local services for people caring for eligible Veterans enrolled in VA health care. The program includes general support for caregivers of Veterans from all service eras, along with enhanced benefits for certain qualifying family caregivers. Visit the VA Caregiver Support Program. 

VA Caregiver Support Team Directory

VA Caregiver Support Team Directory

VA Caregiver Support Team Directory

This directory helps caregivers locate the dedicated Caregiver Support Program team at their nearest VA medical center. These teams can explain available VA caregiver services, help determine which programs may be appropriate, assist with enrollment, and connect families with VA and community resources. Search by state or U.S. territory at the VA Caregiver Support Team Directory. 

Dementia Caregiving Resources: A Guide to Help You Navigate the Journey

Recommended Reading

Dementia Denied

Dealing with Dementia for Caregivers

Dealing with Dementia for Caregivers

 Dementia Denied tells the remarkable true story of Ginger Smith, who was placed in hospice with a terminal dementia diagnosis before experiencing an unexpected recovery. Blending her personal journey with carefully researched information, the book helps caregivers recognize overlooked medical factors, question sudden or unexplained cognitive decline, communicate more effectively with healthcare providers, and continue advocating for answers—even when a diagnosis appears final. 

Find out more

Dealing with Dementia for Caregivers

Dealing with Dementia for Caregivers

Dealing with Dementia for Caregivers

 Dealing with Dementia for Caregivers is a practical, easy-to-use guide for families navigating the daily realities of dementia care. It explains common caregiving mistakes, offers helpful scripts for difficult conversations, and provides guidance on behavior changes, safety, sundowning, burnout, late-stage care, and more—along with more than 70 trusted resources caregivers can turn to for additional support. 

Find out more

The Memory Keeper

The Caregiver's Care Package (2-in-1 Edition)

The Caregiver's Care Package (2-in-1 Edition)

 The Memory Keeper is a guided life-story journal designed to help individuals preserve meaningful memories, personal history, family traditions, and important life experiences. Its thoughtful prompts give caregivers and loved ones an easy way to begin conversations, encourage reminiscence, and create a lasting keepsake that can be treasured by future generations. It also includes a chapter on how to create a video journal of your loved one's most sacred memories.

Find out more

The Caregiver's Care Package (2-in-1 Edition)

The Caregiver's Care Package (2-in-1 Edition)

The Caregiver's Care Package (2-in-1 Edition)

 The Caregiver’s Care Package combines Dementia Denied and Dealing with Dementia for Caregivers in one comprehensive volume. Caregivers receive both the powerful true story of Ginger Smith’s unexpected turnaround from a terminal dementia diagnosis and a practical guide filled with communication strategies, safety tips, caregiving solutions, and more than 70 trusted resources for navigating the challenges of dementia care. 

Find out more

Additional Recommended Books

The 36-Hour Day-Nancy L. Mace & Peter V. Rabins

Creating Moments of Joy Along the Alzheimer's Journey-Jolene Brackey

Creating Moments of Joy Along the Alzheimer's Journey-Jolene Brackey

 The 36-Hour Day is a widely respected guide for families caring for someone with Alzheimer’s disease or another form of dementia. It offers practical advice on managing daily care, communication challenges, difficult behaviors, safety concerns, legal and financial planning, and caregiver stress throughout the progression of the disease. 

Creating Moments of Joy Along the Alzheimer's Journey-Jolene Brackey

Creating Moments of Joy Along the Alzheimer's Journey-Jolene Brackey

Creating Moments of Joy Along the Alzheimer's Journey-Jolene Brackey

 Creating Moments of Joy Along the Alzheimer’s Journey offers practical, compassionate ideas for bringing comfort, connection, and happiness into the lives of people with dementia. Rather than focusing only on memory loss, the book encourages caregivers to create meaningful moments through kindness, humor, reassurance, familiar activities, and an understanding of the person’s emotional needs.

Still Alice-Lisa Genova

Creating Moments of Joy Along the Alzheimer's Journey-Jolene Brackey

Still Alice-Lisa Genova

 Still Alice is a moving novel told from the perspective of a successful professor diagnosed with early-onset Alzheimer’s disease. Through Alice’s changing thoughts, relationships, and sense of identity, the story helps caregivers better understand the fear, frustration, grief, and emotional complexity experienced by both the person with dementia and the family members who love them. 

Legal Help When Something Goes Wrong

Woman sitting at a desk talking to an attorney.

Most caregivers hope they will never need legal help. But when a loved one suffers a preventable injury, serious neglect, medication mistake, unexplained fall, wandering incident, abuse, or a wrongful death in a hospital, assisted living community, or nursing home, legal guidance may become necessary. The firms and legal resources listed here focus on negligence, abuse, and injury claims involving vulnerable adults and older patients. 

Important Note:

This section is provided for informational purposes only and is not legal advice. Inclusion on this page does not mean we guarantee or endorse any law firm’s services or outcomes. Laws vary by location, deadlines can be short, and each case depends on its specific facts. Always do your own review before hiring counsel. 

NURSING HOME LAW CENTER, LLC (Most U.S. States)

Nursing Home Law Center, LLC provides legal information and representation for individuals and families affected by nursing home abuse, neglect, and preventable injuries. Their attorneys focus on helping families pursue accountability in cases involving falls, pressure ulcers, medication errors, dehydration, abuse, wrongful death, and other forms of negligence in long-term care facilities. 

BEN CRUMP LAW, PLLC (27 U.S. States + D.C.)

Ben Crump Law, PLLC is a nationally recognized civil rights and personal injury law firm known for handling high-profile cases involving negligence, wrongful death, and institutional accountability. The firm represents individuals and families affected by serious harm, including nursing home abuse, medical negligence, and unsafe conditions, and is particularly focused on advocating for vulnerable populations who may not be able to speak for themselves. With a broad geographic reach and extensive litigation experience, they can serve as a starting point for families seeking legal guidance after a preventable injury or loss. 

FELLER & WENDT (AZ, ID, & UT)

Feller & Wendt is a personal injury firm handling cases involving serious injury, wrongful death, premises liability, medical negligence, abuse, and institutional negligence. This may be relevant to families dealing with preventable falls, unsafe supervision, medication-related harm, hospital negligence, or injury in a care setting. Serves Arizona, Idaho, and Utah. 

MARKS & HARRISON (Virginia)

Marks & Harrison is a Virginia-based personal injury law firm that represents individuals and families affected by serious injuries caused by negligence. Their attorneys handle cases involving nursing home abuse and neglect, unsafe premises, motor vehicle accidents, medical malpractice, and wrongful death, providing legal guidance to families seeking accountability after a preventable injury or loss. 

ROSENFELD INJURY LAWYERS (Illinois)

At Rosenfeld Injury Law, we understand how devastating it can be when a loved one suffers abuse or neglect in a nursing home. Our team of leading Chicago nursing home abuse lawyers has spent decades fighting for elderly and disabled residents throughout the city and across Illinois, while also providing caregiver tools and caregiving support for families. We strive to ensure that families have access to vital dementia resources, helping them navigate the challenges of caring for their loved ones.

THE GORI LAW FIRM (Multiple states)

 Gori Law provides educational information to help seniors and caregivers better understand legal issues that can arise following injuries, nursing home neglect or abuse, medication errors, unsafe living conditions, transportation accidents, and other situations involving the safety and well-being of older adults. The firm serves clients in multiple states and offers guidance on when consulting an attorney may be appropriate. 

IMPORTANT DISCLAIMER:

These legal resources are shared as starting points only for those seeking caregiving support. We are not a law firm, and nothing on this page creates an attorney-client relationship. Before choosing a lawyer, especially when seeking help related to caregiver tools or dementia resources, verify licensing, read independent reviews, ask about relevant case experience, and confirm the states or localities where the firm is actually authorized to practice.


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